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INDORE: A welfare society has been formed by the victims of unethical drug trials along with a group of doctors, public representatives and health activists. An organization in the name of Madhya Pradesh Clinical Trial Victim Welfare Society ( MPCTVA) was registered on Thursday.
The main aim of the forum is to raise awareness about clinical drug trial, make available the health facilities and to fight for compensation to the victims afflicted with the unethical clinical trials. The president of the society Ajay Naik said, “After my child was subjected to drug trial, I decided to fight for the cause so that others have prior knowledge about the procedures being followed in clinical trials.” Naik’s son was subjected to clinical trial by Dr Hemant Jain after which his son developed white spots all over his body. So far more than 25 victim families have accepted the membership of the society.
The society plans to upload the updates related to clinical trials on its website www.swasthsamarpan-ctva.org. “Those who want to join the society can log on to website to contact the people associated with the organization,” said Naik.
The society is also preparing data base of 81 patients who had developed serious adverse events or had died due to unethical clinical trials. The society has nominated Congress MLA Pratap Grewal and independent MLA Paras Saklecha as honorary members of the society. The other members include health activists Kalpna Mehra, Dr Anand Raje, Dr Anand Rai and Rajendra K Gupta.
